Today’s outfit post is a little different. I questioned whether or not to share this at all, but I think it serves as a good reminder that behind every cookie-cutter glitter-dipped blog, there is a real person.
For the last 72 hours, I’ve been undergoing an ambulatory EEG, to record brain activity and attempt to shed some light on my epilepsy. I in no way am sharing this for pity, attention, sympathy, or anything of the sort. November is Epilepsy Awareness Month, and I’m sharing this getup to spread the word.
Epilepsy affects 2+ million Americans, and 65 million people worldwide. There is no cure, as of yet. But we’re working on it.
I’ve mentioned my condition here before, and I won’t drone on it. But something quick you can do: Read this Seizure First Aid Guide. 1 in every 10 people will have a seizure in their lifetime. If you witness one, you can make all the difference by following these simple few steps.
Chambray Shirt c/o Old Nay (now on sale!) | Scarf c/o Shawlsmith London | Leggings, Hue | Watch, Urban Outfitters | Tote, Garance Dore for Kate Spade (available on eBay here) | Rain Boots, Hunter
Thank you for letting me put this all out there today! In happier news, my sweet scarf [that was so cozy to cuddle up with this weekend] is from Shawlsmith London, and they are offering 25% off a scarf of your choice with code SSL25! Purple is the official color of the Epilepsy Foundation, so I have my eye on this one 🙂
Happy Monday, friends. Here’s to a great week!
fizzandfrosting says
I’m really glad that you shared this. I’m off to read the guide now. Hope you have a great week!
birdietobe says
Oh my goodness. I am sorry you have to go through all of this. I just want to say I appreciate your positivity and your energy in your post today! Xo
Elissa (@style_wire) says
Behind every glittery blog though, there is also a strong and motivated woman! AKA YOU! I know you’ll come through this like a champ Emily, and sharing your story and bringing awareness will certainly inspire many!
xo
Always Maylee says
Thank you for sharing this, you are such a brave and strong woman!
xo, Yi-chia
Always Maylee
Sharon says
Thank you for sharing this with us! I’m a social worker and I have a client that has seizures pretty often. I think that guide would be very useful for the staff here!
-Sharon
The Tiny Heart
Georgina says
Emily you are a little blonde warrior and this makes me love you even more (I never thought it possible!) Thank you for bringing awareness to Epilepsy and I will do my part to spread the word as well. Keeping you in my thoughts lovebug xo
Amy says
So glad you shared this Emily! I hope your tests went well. AND I love that scarf!!
extincshion says
You are strong & beautiful
Tanks for sharing this
abigail sterling says
You are such a brave and strong women – I commend you for writing and sharing these photos (and you look beautiful!). You inspire me Emily!
the fabulous life of a natural disaster says
You are such a brave and strong women – I commend you for writing and sharing these photos (and you look beautiful!). You inspire me Emily!
Alex Hubbard (@AlexHubbard) says
You’re SO SO amazing and so so strong, and thank you so much for sharing these. You’re great. Seriously. I lub you a lot.
Celina says
You’re amazing, and always fabulous even in medical gear! <3
Alana (@goodgrlgoneblog) says
Thanks for sharing this, Emily! So proud that you’re using your blog to help spread awareness!
Christina says
Thanks for sharing your story and the seizure first aid guide, my little sister had a seizure in front of me when we were little kids it was one of the scariest experiences in my life. I love your outfit, your pink Hunter boots are adorable!
http://simpleeasystyle.blogspot.com/
Jacqueline says
Thank you for sharing this with us! I know it probably takes a lot of guts! Such a great post about “real life”! Thank you for spreading the awareness! You are one brave girl!
xo,
Jacqueline
stylininstlouis.com
brengirl16 says
It’s amazing to hear the real struggles and the voice behind even the glitteriest blogger, so thank you for sharing your story! xx.
kelseybang says
this post is fantastic! you are an amazing women and dress so dang cute! love those pink boots 😉
kelseybang.com
Sam says
Such a brave post, and I agree that it’s nice to see the real people behind the glittery blogs. I hope the EEG provides some insight! PS Love the hat! Go Sox 🙂
xo
Sam
The Preppy Leopard says
I hope your tests go okay! I used to work for a neurologist, and we had a lot of patients do the ambulatory EEGs–I always felt so bad for all the goop we had to spread on their hair, but they were always such troopers!
I’m glad you shared this. I’ll definitely keep you in my prayers! xoxoxoxo
Leah says
I too have epilepsy! I find it very hard to share because most people consider it trivial and do not take it seriously. They make the almost obligatory comment of “oh, so you like you’re basically twerking when you have a seizure” or while dancing erratically point out that they look just like me. It upsets me but I understand that humor is a coping mechanism for most people. I even do it on occasion. I share my epilepsy anyway in the case that I may be with that person when I do in fact have a seizure. I hope that they will remember our conversation about how to deal with an epileptic episode. I love that you are increasing awareness for this subject and i hope that your tests come out efficient and helpful! You are doing a great service to yourself and the Epileptic community!
shell chic'd says
Thank you so much Leah– this is especially wonderful to hear from someone else within the epilepsy community! xo
bucklebuttonzip says
So glad that you shared it. It’s a good reminder that people have a lot more going on than we see on the outside. Good luck with everything and I hope the tests go well. You are one strong lady!
Mree says
Thank you for sharing your story and bring awareness to Epilepsy. Many people do not know what to do and it’s really important for people to know and understand. You are a very brave and strong person.
Hugs, Mree
Tianna Gallinaro says
I truly applaud you for sharing your story! My roommate’s friend had seizure the first month of college and didn’t tell any anyone she was epileptic and it was extremely scary! Thanks for being brave enough to share!
xo Tia
Melina says
I definitely applaud you for sharing this, any bit of education on conditions like epilepsy helps, especially (I think) in outlets not often traditionally utilized. I wish you the best of luck with your tests and I’m going to go read through the guide now. So thank you for posting and raising awareness! 🙂
Blondie, Esq. says
Thank you for sharing your story, and I hope the EEG helps you find some new ways to manage your epilepsy. My uncle is a prof at Stanford and has been working on a cure for epilepsy for years. Thinking of you both this month! xoxo.
Courtney says
Catching up on your blog and wow, you’re brave to get so personal! I hope the testing helps!
Hope to see you soon 🙂